So…. Since my last blog back in July I’ve been up and down. I did manage to get Cycle 3 in of the 3 drugs I’d had previously. After weeks of delay due to many reasons (sinus infection, abnormal blood results). After cycle 3 I was poorly, actually poorly is massively downplaying it, I was completely drained and had all the horrible side effects going! It was decided then that I wouldn’t have the final cycle (cycle 4) but would go straight onto maintenance therapy of Avastin (Bevacizumab) which is a monoclonal antibody drug which basically stops the growth of new blood vessels to the cancer. We are at the point now of exhausting all of the treatment options available to me, so we as a family have had to have some difficult conversations.
Conversations that are so important to have and some people manage them better than others. I think when the Avastin stops working I will also be thinking of moving my care back to Teesside (up the Boro!) because driving to Leicester and back every 6 weeks for a CT scan is a right pain, it works out to be a ten hour day, even though we always get a cheeky Nandos on the way back!
Fast forward to today……….
I was admitted to ward 14 on Saturday with reduced oral intake and shortness of breath and haven’t really gotten any better. I had a CT Scan on Sunday, my consultant came today and explained that the scan showed that the cancer has taken over in my abdomen and the decision has been made to stop treatment and go home with palliative support. So that’s the plan. Go home and be with my loved ones. This will likely be my last blog so I’d like to take this opportunity to thank you all for reading.
Bloody love you beautiful human, you are sunshine and then some. I want you to know that your strength and grace in the face of lifes challenges are truly remarkable. The way you handle everything with such calmness, fire and determination is an inspiration to everyone. Much love to you and yours always and forever
Allison xx
Like
Karen Burdon
Nov 07
god bless you HELEN you have shard your journey with us ll, and explained every day of your journey which must have been so hard , but your have inpired others with your expeirince and knowledge of your disease and hopefully your journey wil help others in the same siutation .... im sure your blog and presnetatins will help others , love karen burdon x
Like
jkeld64
Nov 07
I’m so sad to hear this Helen, you have been an inspiration to everyone who knows you, sending you love and hugs xx Jan Hughes
Like
louwilkinsongroupfitness
Nov 07
God bless you Helen. You are an inspiration to many. Now spend your time and energy being with those closest to you.
Bloody love you beautiful human, you are sunshine and then some. I want you to know that your strength and grace in the face of lifes challenges are truly remarkable. The way you handle everything with such calmness, fire and determination is an inspiration to everyone. Much love to you and yours always and forever
Allison xx
god bless you HELEN you have shard your journey with us ll, and explained every day of your journey which must have been so hard , but your have inpired others with your expeirince and knowledge of your disease and hopefully your journey wil help others in the same siutation .... im sure your blog and presnetatins will help others , love karen burdon x
I’m so sad to hear this Helen, you have been an inspiration to everyone who knows you, sending you love and hugs xx Jan Hughes
God bless you Helen. You are an inspiration to many. Now spend your time and energy being with those closest to you.
With love and peaceful wishes
Lou xx